Saturday, January 31, 2015

Congradulation!! You're....

Grounded!!!

Lately I have been running out of time & patience with the boys - I am spending a lot more time at school, play demands for Donald, business is increasing, Mike is on the road more lately, the house is a mess & Karl and Kyle are getting too old for time out so they have been acting up more. Last week I saw a new form of punishment that is more effective than time outs and will help me with cleaning the house. The photo shows Karl's list that we are working with right now. I am tweaking the projects as they try them, for example it says dinner but for Karl & Kyle that will be changing to breakfast & lunch. The amount of points vary to their age, Kyle 150, Karl 200 and Donald 500.

This week they have been thinking that the points adding up was no big deal so they all have a LOT of points. Now that it is Saturday and they cannot watch TV, use computers or play with toys they see the error of their ways. Since we are about to get a third storm in a week I know they really want to get off groundation so they can have fun during their snow days. So I made them a deal, they all work together to clean both bathrooms top to bottom and they will get off groundation  this time.

I was very clear to them that this is a one time offer as they are still learning the new system. Although I think as we amend the sheets, I will be adding working together projects on each sheet. Working together has been a very hard task for the boys as they each want to be in charge, each thinks they know more than the others and usually they all end up fighting.  Although for the past hour they have been upstairs working together to clean my bathroom and they are not fighting :)

Really hoping this new system works, only time will tell :)

Wednesday, December 17, 2014

Karleen's Ideas

         Last week was the 3rd Anniversary of the opening of Karleen's Ideas. It was bittersweet  - Sweet because my online sales are up 25% - Bitter because not one local person has walked into my shop in two months. I have tried some many techniques to show locals that Karleen's Ideas is like every other business except for the fact that instead of the shop being at a Shopping Mall it is at my house. I have handed out coupons at parades, create a shop local groups for all local businesses to network, do craft fairs, etc.....I even begged local newspapers to write a story about Karleen's Ideas & Home Occupation, The Village did a great story for me but sadly other papers refused or said they would but didn't. Many have said that I should just close the shop and only do online sales while others have said that I should get a retail spot downtown Kennebunk. My dream is o open a shop that will look like Santa's Workshop as I love to create one of kind gifts that make people smile but sadly for three years I have been in a vicious cycle, locals do not like to shop at home businesses so I cannot buildup the funds to rent a retail space downtown.

Insanity: doing the same thing over and over again and expecting different results.
                                                                      - Albert Einstein

This Spring the vicious cycle will come to an end, I will either find a retail space in another town as Kennebunk retail space is not affordable or I will close Karleen's Ideas shop and only do online sales unless this blog sparks locals to just stop by Karleen's Ideas to see all the beautiful items I have created. I am writing this blog to let locals understand what Karleen's Ideas is all about.

I started Karleen's Ideas a long time ago while we were still in RI, I started it with making Weighted Blankets for children with Autism & SPD. I wanted to help Autism families afford the sensory items their children desperately needed. Over the years I have been adding creations so when we found out that I could do home occupation, I jumped at the opportunity to work from. I thought that since Kennebunk is so big on supporting local businesses and farms it was a great way for me to have a shop and be home for my boys. Well hundreds of cars pass my house weekly yet only about 25 locals have stopped into my shop in three years, if I were to subtract friends then that number drops to 10. Many have said, "It doesn't look like there is a business" (Not allowed under Home Occupation guidelines)- I agree from the outside it does not look like a business, that is because I am not allowed to look like a business. But when you walk into my shop, it looks like a very cute small business with many, many unique creations at every price level. Everyone that has been Brave enough to come in the door loves my shop.

Karleen's Ideas has Jewelry, Shell Art, Christmas Stockings, Sewn Items, Sensory Items, Team Items, etc.....I also do a lot of custom orders so together we create the perfect gift.

At first Karleen's Ideas was so I  could work from home then my dream became that one day I would open a shop downtown for my boys to take over. Having three boys with Autism I worry about how they will be able to support themselves if they cannot or do not get a college degree. Karl & Donald have shown great interest is taking over our shop. Donald loves to sell, if you have seen us at a craft fair then you know he is quite the charmer. Karl loves to create, he takes after me in every way :)  Kyle shows some interest but he is still young so that could change.

If you are one of the many that have said, I always wanted to stop by but for one reason or another did not, now is the time as this may be the last year Karleen's Ideas is open.
 I will never give up trying to open a shop in a retail space but I cannot continue to hope locals will come into my shop at the house.

Karleen's Ideas is open - Monday, Wednesday, Thursday, Friday & Saturday from 12 to 5 (I take two short breaks on weekdays to bring & pickup Donald from MSK, The breaks are from 1:45 to 2 and from 3:50 to 4:05)








Friday, June 27, 2014

Sensory Diets

I am asked all the time - What is a Sensory Diet?? So I thought I should just write a blog to help everyone understand why many children with Autism, SPD, APD &  ADHD benefit from a Sensory Diet.

A Sensory Diet is made up of schedule activities to help a child regulate throughout the day. Many children need sensory breaks every few hours, especially during the school day as it is hard for them to sit still all day long. Sensory Items like weighted lap pads, fidget toys, balance cushions, gum, chew tubes, oral vibrators, velcro, bungee cords, etc.. Activities that can be done to help a child regulate include jumping jacks, pushups against the wall, carrying paper to the office, jog in place, etc...

What sensory items or sensory activities you use will vary for each child, and will depend on whether a child is a sensory seeker, sensory avoider or both. Sometimes it takes a lot of trial and errors to find what will work best for your child, here are some ideas to help narrow down what a child may need.

Child  that chews on clothing, pencils and/or other nonfood items - Many times when a child chews on nonfood items they are looking for oral input, try the following items -  gum, chew tubes and/or an oral vibrators.

If a child cannot sit still, they need a sensory break of an activity like jumping jacks, pushups against a wall or carrying heavy items to the office.

A child the fidgets with his shoes to the point of wearing them in a short period of time - A bungee cord around the bottom of their child will give them a way to fidget with their feet but not ruin their shoes.

A child that needs tactile input will benefit from having velcro under their desk and/or having a fidget strip.

Weighted lap pads work best when used twice a day to help a child regulate, I usually suggest 10am and 2 pm. Also when a child is struggling with a certain subject.

If your child does not have a sensory diet in place, contact his/her OT and ask the OT to help you step one up before School starts up again. Many times when a child has a good sensory diet in place they come home from school calm, whereas without a sensory diet they want to literally bounce off furniture and walls.

In a few weeks I will be speaking about Sensory Diets & the Sensory Items I make in York Maine, feel free to send me a FB messages through my page Red on Autism if you would like more information or  have any questions.

Tuesday, May 6, 2014

Dear Playground Dad


Dear Playground Dad,

   The one that thought it was OK to tell my son he was too old to be on the tire swing.  I understand you feel I handle things wrong the other day, you think I was too loud & that I was rude. Here is what you don’t know, I used a LOT of self-control to stop myself from being a lot louder and stopped myself from making you feel about 2” tall because you sir had no right to tell my son that he was too old for the tire swing. You are lucky that I did not know what you had done when I first approached you.

  When I approached you I had just checked on Donald and saw that he was having fun with the other kids, something he has done for the past two years. He always plays, help and looks out for the younger kids on the playground while his brothers play T-Ball and there has never been an issue. As I walked back to watch my younger sons play ball I heard you say to your friends something like – “See the kid in the red cap with the sweatshirt…..look he is just waiting to get back on that swing…..I am going to talk to him.”  So I followed you and told you if you had a problem you were to speak to me. 

  Yes my son asked your son to get off the swing because your sons cleats were dangerous while your son was standing as he could have stepped on another child’s hand with those cleats. Later I explained to my son that he was not in charge of what happens at the playground and next time to seek out an adult for advice. You may feel my son was wrong but I do not as my son’s only intention was to protect the other kids.  

 You said that my son was spinning the tire too fast, I tried to explain that many times the kids ask him to do that but you did not want to hear what I was saying so I called my son off the playground. Was I talking loud to my son, yes because I know my son, he will feel like he did something wrong so I spoke louder trying to get him to understand that I was on his side before he had a meltdown over being pulled off the playground.

  See there is something you do not know – Donald has Autism, so he processes information differently than typical kids. Other things you do not know – Donald is homeschooled because his teachers had no interest in learning about his Autism. That Donald would much rather be at his own Baseball practice but he has been bullied out of Sports in Kennebunk. He would rather be at a friend’s house but he does not have many friends because kids do not understand his quirks.

   So Donald tries to make the best of the boring T-Ball games by playing on the playground, helping the younger kids and looking out for them. Now YOU have taken one more thing away from him because YOU feel 12 years old is too old to be on a tire swing. Well Sir, I am 45 years old and I had been on that very same tire swing with the kids so you see 12 is not too old and you Sir are NOT in charge of what MY children are allowed to do.

Next time – DO NOT approach the child, ask all the parents around you to see who the child’s parents are then ASK the child’s parents to help you figure out what is going on before you act.


Friday, April 25, 2014

When a haircut is more than a haircut!!

      Karl & Kyle have always had long hair but recently have been talking about cutting it short. They have talked about it in the past but usually change their mind the minute they are in the chair at the Barber Shop. A couple of weeks ago Donald got a buzz cut as he does every Spring so talks of short hair started again. Kyle stated he wanted a short haircut because everyone calls him a girl so I showed him pictures of famous men with long hair so he could see that men have long hair too. I also talked to him about making decisions based on his wants not what others say and that it is OK to be himself. He decided he would keep his hair long that is until Karl cut his short. Kyle loves his haircut :)

     For Karl, his hair has always be his security and a huge part of his identity so I was very nervous about letting him cut it short. He will turn 8 in August so I know I need to start letting him make decisions for himself as he needs to learn the consequences of decisions and how to cope with them. The minute the first strand of hair was cut I was crying inside as I knew this was a big mistake but I kept reassuring him that it was looking really cute. We all told him how proud we were of him and how handsome he looked and I thought things were good. Shortly after getting home he seemed a bit clingy but I just figured it has been a long week so he needed Mom time. Later we went to their baseball practice, he did not want to get out of the car, he was shaking and scared. I managed to get him to the field but he hid behind me for a while. Then they were to run the bases for which he loves to do so he reluctantly joined then his coach asked a question and Karl knew the answer which boosted his spirits. He played well the rest of practice so I thought all was good, just nerves of a new team.

     Then is was cuddle time and the following conversation takes place:

Karl - Is there a wishing star tonight?
Me - I don't know, why?
Karl - I want to wish my hair back
Me - What's wrong Peanut??
Karl - Nothing
Me - Do you like you haircut?
Karl - Yes
Me - Karl, it is OK if you do not like it.
Karl - It is?? Good because I do not like it, I want it long again.
Me - Karl I am very proud of you!! You have wanted to cut it short for a while and it is good to try new things now & then.
Karl - Big smiles with a 'Thank You Mom'


He seemed better before going to bed but has woken up very clingy and saying 'I want my long hair back.'   I just reassure him that it will grow back in time and to be patient. While my heart breaks for him seeing him upset and insecure, I know that it is a good life lesson for him as it will push him out of his comfort zone without the security of his hair. My hair appointment is today, I had been debating on going a lot shorter than I have in the past but had decided on keeping it long. That is until this morning, I will get my hair cut shorter and Karl & I will let our hair grow out together :) 


A BIG Thank You to Ed at Main Street Barber Shop in Kennebunk!!!!  Until Ed opened his shop I had cut Karl & Kyle's hair as they did not let others touch them. Ed has taken time to understand Autism, how to work with my boys and they trust him completely. I think he was just as nervous about their haircuts as I was as he knows how important their long hair has been. Ed was amazing with them yesterday by making them a part of the decision for length and talking them through the process. Kennebunk is very luck to have such a fabulous Barber Shop in town :)

         Here are before & after photos.

Saturday, March 1, 2014

Cupcakes in School

    In my humble opinion schools should allow students to celebrate their Birthdays, Halloween, Christmas, Hanukkah, Kwanzaa, Valentine's Day (not friendship day), St Patrick's Day and any other Holiday that is a part of the students life. While our family celebrates Christmas, I would love to see a Menorah and a Kwanzza Kinara right next to a Christmas Tree. Celebrating different Holidays teaches our children diversity.

    Cupcake & junk food bans are in the media again, many are either stating cupcakes should not be allowed because of students having allergies or because cupcakes are not healthy. I know many are not going to agree with me but cupcakes and other junk foods should be allowed in school, not just on special occasions but every day. Yes I am all for our kids eating junk food in school - insert your scream here ********************.  I am sure many of you have just cursed me to hell, that is fine, many have done it before and  many will do it in the future but do not stop reading as I will explain why I feel junk food should be allowed in school, I will break it down into two parts - Allergies & Healthy Eating.

   ALLERGIES

   My boys and I have Celiac Disease and cannot have gluten. For most people gluten makes them sick, some very sick, some like myself can barely walk the next morning because my joints are so swollen. Since Mike is only home 4 to 6 days a month, I need to be able to walk to take care of our three boys.  Our need to be gluten free is not taken seriously and many feel that we do not understand what it is like to have a 'real' allergy. My experience with food allergies and what food can do to a body goes way beyond having Celiac Disease.

   My medical history is long I could write about 4 eight hundred page books so I will keep this part as short as possible. At 11 weeks old I became very sick, Doctors could not find out what was wrong with me. Trying to figure out what was wrong Doctors removed all store bought formulas from my diet and I was only allowed to have a homemade meat based formula. As I grew up my Father told me - "it  looked like shit, smelled like shit and you poor kid, it must of tasted like shit."   To this day, the sight of gravy makes me gag. I am sure you are thinking that it is no big deal that they had to make a homemade formula and you are right. At first it was no big deal but then three years later I was still not allowed food. Through the first 3.5 years I was admitted into hospitals 57 times, this didn't count the times I went & stayed 12 hours in ER then sent home, my parents lost count of the ER visits. During those years I went through every test the doctors could think of and even lived in a plastic bubble for two months. At 3.5 years the Doctors in RI told my parents they could do no more for me. My Father talked with his connections from the East Providence Ambulance Company and made an appointment for me with Boston Children's Hospital. Two weeks later we had the appointment, Doctors there yelled at my parents for not telling them how bad I was. My parents responded "What?? Today is a 'good day' "  While at BCH they found that I had been born with Colitis, a disease that was thought to only affect adults. I was allowed food for the first time, of course when the nurse gave it to me and insisted I eat it, I threw it against the wall. See, my parents taught me to protect myself, they taught me that I was not allowed to eat unless my Doctor or parents said I could. I was taught that nurses & candy stripers might make a mistake. So I threw the food against the wall, boy was she mad, she started to yell when my Dad and the Doctor came in, they stopped her and praised me for knowing how to protect myself. I left the hospital two weeks later on a very strict diet.

   Fast forward to the present - I have three boys with Celiac Disease, I have brought them up to protect themselves and only to eat what is safe for them. I also do not ask their classmates or school to be gluten free because my son dietary needs should not be the burden to the rest of the school or the parents. I am very sensitive that some children have severe allergies and feel measures should be taken to keep the child safe but that does not mean all children needs to live allergen free. There are many ways to protect a child without having to alter the lives of the other 90 % of students in the schools.

HEALTHY EATING

   I am plum sick and tired of that fact that people want only healthy foods in school. Everyone keeps saying that by not allowing junk food in schools we are teaching kids how to eat healthy. NEWSFLASH - By not allowing junk food in schools you are teaching children to binge eat when given junk food. It is the same logic as to why most diets do not work, once the dieter does have a treat they overindulge. If parents and schools want to teach a child how to eat healthy than they should be teaching children to eat in moderation. How about allowing one item of junk food daily along with all the healthy foods.

  I am sure that if people saw my food cupboards they would think I am the worst Mother in the world because there is a LOT of junk food. Here is the thing, I taught them to eat in moderation. They eat a lot of fruits & veggies so I have no problem with them having junk food. For those of you that know my boys or seen their pictures, you know they are all thin, healthy and ACTIVE boys.

  Active, the key word to keep our children healthy. Too many kids today have IPads, video games, computers and other electronic items that do not allow the child to be active. Sadly the schools encourage less activity by giving children IPads, laptops and websites to learn. Maybe just maybe if the electronics were packed away a few times a week children would go outside to play, interact with their family and learn to make better decisions.

  Again, moderation is the key to success with most things. We need to teach our child that the occasional cupcake is OK to have, that electronics are only tools to help us not an appendage to their body and that most things in life are OK to have in moderation.

   As for allergies, yes it sucks to have a child with allergies but it is not fair to force every child to eat allergen free as there are to many allergens in the world. I hear all the time that 'needing to be gluten free is not deadly.'   That statement baffles me and I think 'since I will not die on the spot it is OK to make me sick'???  What many do not realize is that being Gluten Free is the hardest of all the allergens to deal with because it is not a solid. ONE crumb of your child's bread, cracker, cookie, cake or any other item can be brushed into my sons food and make my son very sick. The peanut butter in my sons sandwich IF I sent PB & J sandwiches (I don't)  would not jump out of his sandwich onto your sons food. My boys have been taught how to make sure they are not glutenized and they do not expect nor do I expect anyone to do it for them. Too many parents micromanage everything and the children are not learning how to be allergen safe on their own. No one wants your child to get sick, die, have hives or anything other reaction. But if you took fish, shellfish, all nuts, milk, egg, gluten, soy, and dairy out of the schools, what would be left??

   Those kids with allergies will be fine!!! Their parents can send in a special safe treat for them and they can learn the life lesson of "they are not going to have everything they want in life." They will not be scared for life because their cupcake was GF, sugar free, dye free, etc.... They will learn that life will go on around them even though they have an allergy. My boys with Celiac have no problems with not being able to eat the same food as their peers.

 

Wednesday, February 26, 2014

Homeschooling

Looks like we will be going on a new adventure - Homeschooling :)

We will be starting with Donald as I am tired of battling the school and have no trust in MSK anymore (There was an issue before vacation that caused mistrust). Karl & Kyle will remain in school until I see that Common Core is too much for them or that CC is enabling them to be too rigid. I talked with Donald last night, at first he had a meltdown, so we talked about the pros & cons about Homeschooling. With time Donald really started to like the idea of homeschooling. Before bed he gave me a Kiss & a Hug, he hasn't done that is a LONG time.  This morning he was much calmer than usual :)

  I am a bit nervous about homeschooling but feel it is really the best option. Common Core goes against EVERYTHING I have work for for my boys.

- I have worked so hard to teach the boys to be flexible and CC is NOT flexible.

- I teach the boys that everyone is allowed to have different strengths, CC expects everyone to learn the same and do the same.

- I worked very hard so Karl would be mainstreamed with his peers, CC will put him out of the class when he cannot do CC work.

- While I think Kyle could do very well with CC techniques, I am nervous that CC rigid techniques will encourage Kyle to always be rigid and rigid does not work in Society.

Many have never understood my techniques of how I raise my boys, MANY think I am too hard on them. Yes, I am very strict, I push them though their quirks, OCD behavior, I expect proper manners & behavior at all times, all things that EVERY parent should want from their child. What many may not see, is that I am loving, fair, we have a lot of fun and that my techniques are working :)

When parents hear the word Autism for the first time, many mourn what their plans were for their child. I did not mourn, I asked, "what can I do?"  My one goal for my boys (and Karissa) is to live a Happy Independent Life and everything I do is to teach them to be independent and teach them the basics in life. One thing I have learned over the years, 'Old School' works better with children with Autism. Plain wooden toys encouraged the boys to be creative, share and interact. Electronic games only encouraged them to be alone. Picture exchange gave Karl incentive to speak whereas electronics would have done the work for him and he would not have had a reason to talk. I have not found technology to help Karl, most of it would only enable him to let machines do the work for him and keep him by himself and I refuse to let either happen.

Donald has weak fine motor skills, for years the schools refused OT for handwriting and insisted keyboarding was the way to go. Donald is turning 13 in July, he cannot print, does not know cursive enough to do all the time and cannot type with 3.5 years of keyboarding. With Schools having kids do keynotes instead of reports Donald has no idea how to do a manual report and has to rely on his IPad to get his schoolwork completed. I won't even go into how I have seen work quality standards drop dramatically over the past 12 years.

I have been a Mom for 25 years, I have had children in school for 19 years. I have watch education change over the years and most of it is NOT good. School should not be this hard, yes the kids need to learn tough subjects and tests are hard but there should not be homework battles, parents should not have to micromanage every assignment or check websites daily to help keep their child on track.

The only good thing I have seen change over the years - Teachers understanding that all children may have different learning styles & that many Special Needs Children have been Mainstreamed with their peers. Common Core WILL remove all the good that has been established :(